chronic illness caregiving Tag

02 Feb When Strength Turns Inward

Posted at 21:14h in Sickle Cell Caregiving by Allison McNeish 36 Comments

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How Prolonged Vigilance Reshapes Trust, Help-Seeking, and Emotional Survival Pt2 The state of constant readiness does not end when symptoms stabilize. If anticipatory stress goes unaddressed, it does not remain static. It changes shape. What begins as vigilance can slowly turn inward, reshaping how caregivers trust,...

“Caregiver and child reading in bed, representing anticipatory stress and constant vigilance in sickle cell caregiving.

27 Jan When Nothing Is Wrong, But You’re Still Bracing

Posted at 05:36h in Sickle Cell Caregiving by Allison McNeish 0 Comments

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Author’s note: This piece is written for caregivers who feel most alert when everything appears calm. There are days when nothing is happening, and yet everything in your body feels alert. No hospital calls. No fever. No sudden pain crisis. The house is quiet. Life looks, from...